This weather is making me miserable. It just keeps raining and raining. I think I have SAD. I have been feeling very overwhelmed and depressed lately and it can't just be the weather. I don't trust or necessarily like my Endo. I told him that I wanted to have a high enough dose of RAI to be hospitalized so that I wouldn't have to be around my children and unneccessarily expose them to radiation and because I want to be aggressive with this disease. He said I'd have to have a dose of 250 millicurries in order to be hospitalized but he wouldn't mind giving me a 300 dose. I said fine and planned to start my LID on Monday the 15th. Now the more I research and correspond with Dr. Ain (the thyroid specialist in Kentucky) I don't think I should have that high of a dose because it's dangerous for your bone marrow and kidneys. There's something called a dosimetry study that gives a patient a small tracer dose of the radioactive iodine while the patient is on the LID and for five days the patient has blood and urine tests and the nuclear medicine department computes it all and comes up with the maximum safe dose for each individual patient. Well the catch is that hardly any institutions offer this dosimetry and if they do it usually isn't covered by insurance. So I really really want to do my therapy using that technique but I also want to hurry up and get my treatment over with before all the holidays roll around. So I may have to travel after all and I may have to find a new doctor. Whatever I do I'm determined to do this year though because all of my co-insurance and deductibles are met so I'm done with out-of-pocket costs.
On another note, I'm coming down with something because I can't stop coughing and my lungs feel like they're covered in mucous. I have absolutely no energy and tons of stuff to take care of. I need some kind of help but I hate asking. David did say he'd start taking over household cleaning for awhile but he has yet to start and no one but me can really prepare food for the low-iodine diet because I'm so picky and I have the cookbook anyway. I don't know what I need so just pray for me please. Thanks
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1 comment:
we pray for you every night! so, what is the latest treatment? i hope its stopped raining...keep your chin up.
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